Pictures and a long-overdue update!
It’s been quite awhile since we’ve posted anything. It would be an understatement to say that we’ve been a bit busy lately. With doctor and therapy appointments, a trip to Kansas, and family visiting, there hasn’t been much time to sit down and upload pictures or write a blog entry. I’ll try to remedy that here!
I’ve uploaded a ton of pictures to our site. Be sure to check out more than the six pictures you see in the sidebar. I guess you could say that what I uploaded today pretty much covers the month of October!
During the first part of October we traveled back to Kansas for my cousin Aaron’s wedding. Anna and I (and Max, of course) took the opportunity to spend some time with the grandparents during the week prior to the wedding. We had a great time with Granny Debbie and Papa Rex, and I think Great Grandpa Jack enjoyed seeing Miss Anna, too. Neal did his usual traveling madness: he drove out with us on a Saturday, flew back to Denver on a Sunday, flew back to Kansas on a Thursday, and drove home with us on a Sunday. He certainly put in some mileage there. Anna, Max and I were extremely happy that he decided to join us on the long drives across the high plains.
Aaron and Shayla’s wedding was very nice…short and to the point (just like they wanted it)! It was great to see all the family who drove in for the event. That’s what I love about weddings – you have the chance to see family that you hardly ever see! We also were able to spend some quality time with Great Grandma Winnie. Everyone had a great time at the reception. One highlight was the pastor teaching everyone how to do the electric slide! Henry fell in love with the DJ’s lights and was determined to touch them despite Jo’s best efforts to dissuade him. And the BBQ was excellent.
When we returned from Kansas, Anna had her first physical therapy appointment with Kathryn from Tiny Tim. She did an initial evaluation of Anna while I filled out paperwork. She seemed to think that Anna’s biggest challenge will be keeping her left hand open. I thought that was good news! We were given a list of stretches, exercises and activities to do over the next couple of weeks until we see her again. I had a good vibe from Kathryn and I think that Anna likes her, too. We also were able to finalize our occupational therapy assignment. We’ll be starting her OT with Kathy this Thursday.
Granddad Sam and Grandma Mary came to visit us the weekend after we returned from Kansas. We didn’t do anything special – like go to the mountains or zoo. Instead, we all hung out at home and played with the babies. Granddad Sam read many a book to Henry and Anna…over and over and over and over again. And I think Mary had a fun time just playing with the babies. We certainly enjoyed having them here! I hope they don’t wait another year before they come out again!
Last week Anna had 3 different doctor’s appointments. On Monday she saw the pediatric ophthamologist, on Wednesday she saw her neurologist, and on Friday we went to the Stroke Clinic at Children’s Hospital. Here’s what we now know: Anna’s vision is probably going to be fine. There may be some issues that develop as she gets older, but at this point the doctor doesn’t see anything to make him believe that she’ll have any problems.
We were able to see the MRI images at our appointment on Wednesday. The stoke is located in the area of the brain in charge of controling movement – specifically, movement of the muscles of the arm/hand and leg on the left side. The neurologist explained that this is the same area that is affected when someone has tremors due to Parkinson’s. On the computer screen the stroke area was about the size of a quarter, which seemed huge to me until the doctor told us that most strokes she sees cover a much much larger area of the brain. The image on the screen was much larger than Anna’s head, so Neal and I imagine that the actual area is more like the size of a dime.
And on Friday we spent the entire day at Children’s Hospital. During the morning Anna had a neuro-psych exam. They wanted to determine whether or not the stroke has caused any problems with her cognition. There isn’t a whole lot they can do with a 7-month old as far as testing goes, but what they were able to do indicated that Anna doesn’t show any signs of cognitive difficulties. She had problems with those parts of the test that involve bi-manual tasks, but we knew that would be the case! Otherwise she did quite well and scored above the mean.
Later that day we met with a host of doctors from various departments at Children’s: rehabilitation, hematology, and neurology. Several teams of doctors came to examine Anna. They poked, prodded, pulled, stretched, shined light, poked again, tapped on reflex points, stretched again. Poor Anna. Through it all she maintained a sunny disposition despite having snot running out of her nose (she has another cold), drool stringing from her mouth, pain radiating from her gums (teething), and a nasty nasty cough. What a trooper. I know the experience was not a pleasant one for Anna, but it was very positive for us. We learned a lot about Anna’s stroke and her prognosis. We still don’t know exactly when the stroke happened, or what caused it, but we do know that it probably happened in utero toward the end of the second and beginning of the third trimester, and that it probably isn’t due to a blood clotting disorder. They are doing blood work to make sure that is the case. The rehab doctor was extremely encouraged by all that Anna is doing so far. She thinks that there will be very few remnants of the paresis when Anna gets older, and the neurologist said that depending on how Anna responds to therapy, this may all be “our little secret.”
So there you have it…the most up-to-date information. I’ll try to be better about posting pictures and info in the coming months. For now…enjoy!
1 comment October 31st, 2006
We had a fun-filled trip back to Kansas this last weekend to help celebrate grandma Anna Hess’s 90th birthday. Baby Anna was named after 
