Posts filed under 'Health'
I’ve been remiss. Much has happened since my last post.
Anna’s Casting Part II: Our last post ended with Anna having her leg casted to help stretch her tight Achilles tendon. Almost 2 weeks post casting and we can say that it was a real success! When Anna had her first cast removed the following Monday, we already saw improvements in her flexibility. They measure flexibility in terms of degrees past neutral (think of neutral as your toes pointing up to the ceiling if you are sitting with your legs out in front of you) with both a straight leg and a bent knee. When we started Anna was minus 10 degrees with a straight leg and neutral with her knee bent. After the first cast she was almost neutral with a straight leg and 10 degrees past neutral (good!) with her knee bent. After the second cast, Anna was 10 degrees past neutral with a straight leg and 20 degrees past neutral with her knee bent. “Normal” flexibility is defined as 20 degrees past neutral, so we were very excited with the outcome. We’re getting a new brace within the next week or so that will hopefully help to maintain this new flexibility.
I re-read my post from the night before the initial casting; it turns out I was worried about nothing. The process was actually not bad at all (of course, I’m not the one who had a cast on her leg). Anna did everything she would normally do without a cast (some stuff she even did better with the cast than without) – climbing, running, jumping, etc. On the first couple of nights after she received a new cast she complained a little about leg pain. We were told by her PT that this was normal, and that we should give her Tylenol/Motrin to help the pain. After that she didn’t complain at all. Anna was completely freaked out by the cast saw the first time the cast was removed, but didn’t shed a tear during the removal of the second. I’d have to say the one drawback to the entire process was the inability to bathe. Three year olds are stinky beings, and I swear Anna played in the dirt more during those 2 weeks than normal. She left a definite ring around the tub when we were finally able to take a full-fledged bath after 2 weeks of sponge baths!
This past week Anna has been attending a “Helping Hands” camp at the Mapleton Center in Boulder. This is basically a constraint therapy camp where all the campers wear casts on their unaffected hands in an attempt to encourage increased use of the affected hands/arms. This is the first year that the Mapleton Center has offered this camp, and the turnout was a bit lower than they expected. I hope that they continue to offer it in the coming years because Anna is LOVING it! The low turnout has been great for us. There are 3 kids at the camp – 3 little girls ages 3-5 – and 4 adults (2 OTs and 2 volunteers) to manage them. We get the best of both worlds – the benefits of a group setting while still getting the one on one attention from the therapists! Anyway, they practice dressing in the mornings, do all sorts of crafts, spend time outdoors, bake, and play with one another. All the activities are designed to work on particular fine motor skills with the affected hand. She’s had such a great time, and I know she’s working hard by the simple fact that she falls asleep on the way home (it is a rare day when Anna falls asleep in the car). For Mom, it is nice to meet other parents whose children have hemiparesis. We’re planning on getting together after the last day of camp to compare notes!
Noah is now 6 months old! I cannot believe that so much time has passed. It seems like such a short time ago since he was born, but at the same time it seems like forever. The little man is really progressing! We believe it won’t be long before he’s mobile. He’s holding himself up with his arms and tucking his knees under him. We should probably get busy with the childproofing now! YIKES!
Noah had his 6-month check up last week. He weighs 17 lbs. 10 oz. (75th percentile) and is 27 1/2″ long (90th percentile). I was rather surprised that his weight earned him a ranking in only the 75th percentile. He’s a heavy guy!! He’s apparently fallen off his growth curve a little, but the doctor didn’t think it was anything to be concerned about. Anna did exactly the same thing at 6 months. Noah is teething like a madman; he chews on everything in sight and drools all over. For the last couple of weeks hee also seems to have had some sort of GI infection that, when mixed with the teething, has made us go through diapers, wipes and A&D ointment like they are going out of style.
Oh, I almost forgot! Noah has been sleeping in his own room since June 29th. Although we’ve had some ups and downs since he moved from our room, he’s been sleeping much better (and longer)! Last night he slept from 7pm to 6am, and then went back to sleep until 6:45 (when I had to wake him). Sleep does amazing things for his disposition too. He’s a much happier little guy when he gets enough rest! Naps remain a challenge for us, but he’s been doing much better at home in his own bed. If only we could get him to sleep at daycare.
T minus 30…our trip to Alabama is rapidly approaching! I’m a little more relaxed about the trip this time around, but I’m sure I’ll turn into a complete basket case soon. We find out about housing at the end of this month, which makes me a little nervous. I’d much rather know earlier that we have a confirmed place to stay. We’ve been prepping Anna for our trip to AL. We have the same therapist we had when we were there last year. Anna keeps telling us that she just really misses Reggie. I hope she still feels that way when we cast her for a month and make her do difficult things with her left hand. Anna was a very different little girl the last time we were there. She’s definitely come into her own over the past year, and I hope her independent streak doesn’t affect the therapy program (and ultimately, the outcome).
July 22nd, 2009
We’ve been a little busy lately and have failed to post some of what’s been going on! Anna is now a big 3 year old, and has wasted no time in her desire to be a “big kid.” She wants to do everything that the “big kids” are doing. Today Neal took her sledding for the first time on a pretty big hill near our house. She did great sledding by herself and wanted to sled down the big hill just like the “big kids” were doing, which necessitated her climbing up that huge hill many times! Neal was really proud of her, and I’m sad that I missed it!!
Speaking of other big kids…we have a rather large baby in our house. Noah had his 2 month appointment a couple of weeks ago. The little man tipped the scales at 13 lbs (97+th percentile) and measured 23.5 inches in length (95th percentile)! What can we say…we have large children! Other than his size, he is healthy and doing well. As Neal posted recently, Noah has started smiling and talking a lot. He’s really such a happy baby. Anna’s 3 year appointment saw her measuring at 39 inches tall (95th percentile) and 33.5 lbs (75th percentile). She’s fallen off her growth curve a little in weight, but she had been sick the week prior to her appointment. We aren’t terribly concerned about it and neither is the doctor.
March was a very busy month for us. We did another round of constraint therapy with Anna down at Children’s Hospital. Anna was so cooperative with it all, and gained quite a bit of strength in her left hand/arm during this round. At about the same time, she transitioned from early intervention therapy services to therapy through the school district. She started district-based preschool the Tuesday after her birthday, and seems to like it. I guess I should say we *think* she likes it, but honestly she doesn’t like to talk too much about it, which makes Neal and me a little nervous. We’re also not sure how much “therapy” time she’s receiving and what the level of quality is. The other day I asked her if she’d seen one of her therapists that day, and Anna told me that she had and that they watched a movie. Huh? What’s the therapeutic value of a movie? Having been so incredibly hands-on during Anna’s therapy sessions in the past, not knowing what’s going on while she’s having therapy at school is more than a little frustrating for me. I’m thankful we are able to augment her district-based therapy services with private OT and PT sessions.
This week marks the end of my maternity leave. I’ve got mixed feelings about it. On the one hand, I will very much miss my shadow that’s been with me 24-7 for the last 11 weeks. On the other hand, I’ve not had a moment to myself in 11 weeks, so work will be somewhat liberating. I feel less angst about leaving Noah at daycare than I did when I left Anna. Noah will be attending the same daycare as Anna, so the surroundings are familiar to us. We know the caregivers in the baby room (they took care of Anna when she was wee), and have a very good relationship with the center’s director. Still, it’s hard to leave your baby with others because no one can care for him like us. I hope his first day is not too stressful – I imagine mine will be.
March 30th, 2009
So it has been awhile since we last posted. Pretty much everyone in the house has been sick! Anna had a suspected case of pneumonia and Neal, Noah and I have had colds. We’ve been using hand sanitizer like crazy, but I’m not sure how effective it is when the preschooler is running around sneezing and coughing on everyone and everything. Anna has yet another cold that has turned her into a sloppy, runny-nosed, weepy-eyed monster. I feel so badly for her, but the whining does grate on the nerves after awhile. She’s so generously passed this most recent cold on to her father, who is battling it with copious amounts of vitamin c and coldeeze lozenges.
We took Noah in to the doctor shortly after his 5-week milestone to make sure that his cold hadn’t turned into something more serious (namely, pneumonia). He weighed in at 11 lbs. 13 oz! Looking at him, it is hard to believe he is only 7 weeks old. He’s now wearing some 3-6 month clothing! Anyway, his cold hadn’t turned into anything more serious, but it certainly has proved to be long-lived. He still has a stuffy nose 2 weeks later!
We’re starting another round of intensive constraint therapy for Anna this week. Starting today we’ll be wearing a cast on her right arm to encourage her to use her left. I know it sounds strange to say it, but we are actually looking forward to this session, as Anna’s been more and more stubborn about using her left hand. We think she is in need of a “cognitive reset” that the casting seems to provide. Unfortunately, she’ll be casted on her birthday again this year (we were in Alabama last year at this time).
Speaking of birthdays, Anna will be 3 this month! It is so hard for me to believe that 3 years have passed since she was born. Lately we’ve been looking at lots of pictures and videos of when Anna was Noah’s age (Anna’s been curious about what she was like when she was a baby), and that has been a true walk down memory lane. With her third birthday comes the end of our early intervention home therapy services. She’ll be receiving therapy through the school district now, and starts at our neighborhood preschool two days after her birthday. We’re hoping that she fits in there and enjoys her two mornings per week.
Other than those developments, things are pretty “normal” (if you call having zero control and limited sleep “normal”). We’re learned a few things:
- You can sleep just about anywhere, and do so on a near nightly basis.
- You can sleep through just about anything if you are tired enough.
- You cannot please everyone all the time, so please the one that is screaming the loudest first.
- Bouncy seats, swings, and anything else that keep the baby quiet and sleeping are gifts from God.
- Changing diapers doesn’t seem nearly as critical and urgent for the second child as it did for the first.
We hope to post some pictures and videos in the near future. Noah is actually smiling now, which is such a joy to see.
March 4th, 2009
So Debbie left for home and hearth in Kansas on Thursday, leaving us all alone! Sniff!
It’s definitely been a bit of a challenge, trying to coordinate all the demands of a new baby with the needs and wants of a very demanding almost-three-year-old. Tara’s spent the last two days at home with both of them, and it’s been a little hard. But she’s learning. She says the trick is that you just have get over the fact that there will be moments when one of them (and sometimes both of them) are just going to be upset and screaming about the lack of immediate attention. Obviously, I’m completely terrified of the day when I’ll have to manage both of the little buggers all alone myself!
Work for me has been a challenge too, mainly because of the sleep deprivation. Anna’s been up in the middle of the night for at least an hour or two every night since we brought Noah home. She’s caught a new cold, and I’m taking her in to the doctor this morning to get her ears checked since an ear infection is often the culprit when she’s up in the middle of the night for no apparent reason. That being said, we’re also willing to admit that it might just be a combination of a cold + the psychological impact of the new baby that’s making sleep even more of a scarce commodity that usual.
Thanks to Debbie and the folks at work, though, for helping to keep our freezer stocked with food. Not having to worry so much about what’s for dinner is a godsend, since it’s probably going to take us awhile to figure out a new rhythm!
January 31st, 2009
This weekend we took it easy. Anna’s managed to catch “hand, foot, and mouth disease” from some kid at daycare which means she’s running a fever and has a sore in her mouth that makes her not want to eat much (besides ice cream…). Surprisingly, though, she’s been in good spirits and sleeping pretty well despite it all. I’ve got a minor bug of some sort after running on almost no sleep for more than a week due to craziness at work, and Tara’s been running hard and feeling tired too. So we just basically hung out together and tried to relax.
Which makes Anna’s new favorite game all the more fun. It’s called “nap time”. Basically, she puts a pillow or two on the floor, asks Mommy and Daddy to lay down on the pillow, and insists that we close our eyes while she puts a blanket on, and off, and on, and off, and on, and off…
It’s the best game ever.
Updated: Here’s a photo of Colin and Roby playing “the best game ever” with Ms. Anna.
June 23rd, 2008
There’s been a lot going on since we last posted, and I’m happy to report most all of it’s good news!
March opened with a change in the lineup here on Team Anna. Tara’s mom flew out from Kansas on Saturday (3/2) so that she could pinch hit for me while I flew back to Colorado for a week of face time at work. Poor Debbie was sick as a dog when she arrived, but fortunately it turned out it wasn’t anything a whole bunch of medication (procured from a local urgent care) couldn’t fix in a couple of days.
Tara and her mom had a pretty good time of things during the week I was away. Anna made good progress in her therapy and in other ways as well. She’s suddenly able to count to 5 most of the time (sometimes higher?), and has a pretty decent grasp on her ABCs for somebody who’s not even two yet! She’s talking up a storm — still mostly two word sentences, but wow, the vocabulary is impressive. Meanwhile: Her therapists were very happy with her progress, and she’s now used to the (crazy busy) routine, which means she’s sleeping and eating well. She’s mostly healthy, too, which is new and different for everyone.
Lots of work and a bit of the stomach flu kept me pretty busy for the week I was away. It was good to see my folks and Max on Thursday evening, and I managed to make a bit of money at the poker game on Friday. But I felt anxious the whole week and wanted to get back “home” to Birmingham. (It’s very hard to be away from Anna and Tara for that long — I have no idea how parents who travel regularly do it).
Granny Debbie made a fantastic Dora the Explorer cake for Anna’s early birthday (pictures to follow?), which we all enjoyed on the evening I returned. Then Sunday morning (3/9) it was back to the airport to drop off Debbie, who’s apparently deep in the throes of Anna withdrawl as I write this. (Thanks so much for visiting and for all your help!)
So that brings us to this week, our last week of therapy. Anna got her cast off yesterday, which was pretty mind-blowing for everyone involved. Anna was frankly a little bit confused, and kept acting like she was expecting us to put the cast back on. It made us both happy to let her know that the cast is gone (at least for a while). And it was great to finally give the girl a real bath with plenty of bubbles, no rush, and no smelly cast to put back on afterwards!
We were thinking of taking her out to someplace fun like Chuck E. Cheese’s or McDonald’s to celebrate. But the combination of three weeks of not being able to use her right hand plus a bunch of new books and toys from her early birthday celebration this past weekend meant that Anna was really much more in favor of sitting at home and playing in relative peace and quiet. And who could blame her?
Everyone was expecting today to be a really tough therapy day. Anna’s historically really bad about using her left hand after she gets her cast taken off, and the therapists were ready for a major battle. But the girl continues to surprise, and she’s been unbelievably good about using both her hands or even just her left hand when we ask her to. (That’s the new therapy focus: bi-manual exercises). There’ve even been a couple of moments when she’ll use her left hand for a task without even thinking about it! In general, though, today was a great therapy day, and the therapists are really happy with what they’re seeing.
Friday’s our last day of therapy. We’ll have a few solid hours of therapy in the morning, and then we’ll relocate to the clinic at UAB for Anna’s “exit interview”. Saturday we’ll try to pack, clean up, and hopefully get outside to do something fun since the Ides of March is Anna’s official birthday. Sunday we’ll need to be out of our apartment by noon, and grab lunch somewhere on the way to the airport. Tara and Anna fly back to Denver in the afternoon, and after getting them on the plane I’ll start the long drive back home (ETA: Tuesday).
It’s hard to believe we’ve made it this far, and that we were able to survive three full weeks of 24/7 casting and intensive therapy. But we’d do it all again in a heartbeat. The gains have been impressive, and on the whole the last three weeks have been enormously positive for Anna on many different levels. She’s able to turn her hand over much further than she was able to before (even with Botox), she’s able to isolate her pointer and thumb, use a fork independently to stab food, and sit cross-legged. Her core strength and strength in her left hand and arm have improved dramatically. And almost as importantly, she’s really done a truly fantastic job listening and learning to follow directions — a very large challenge for someone so little — and with tolerating all the long hours of therapy.
We’re so very proud of our girl!
March 12th, 2008
I’m finally on the road to recovery after being sick since this last weekend. Thank God for Dayquil. Hopefully I’ll be completely well by the time my Mom arrives this weekend!
Anna is doing a great job with her therapy. Her therapists are constantly amazed at how hard the girl works. We do have our meltdowns from time to time, especially when they ask her to do something that is pushing her to the limit. For the most part, Anna does what her therapists ask her to do, but today she was either tired, frustrated or just demonstrating how terrible the twos can be. After days like today, I imagine the folks in the apartments around us wonder if we are skinning our child. Anna let out some of the most ear-piercing squeals/screams when she didn’t get her way today. It was truly a battle of the wills (and I’m not sure we (the adults) came out on top!).
Yesterday Anna had her first bath in a week. Yes, you read that correctly…ONE WEEK. For the first time in a week, Anna had her cast removed to check for any skin issues or irritations. She had a small blister between her middle fingers, but otherwise things looked fine. The smell…now that was a totally different story. Yuck. We gave her a bath and washed her stinky hair, and she enjoyed it so much that she didn’t want to get out. But all good things must end and the cast had to go back on. Surprisingly, putting the cast back on did not cause any problems. She actually cooperated completely.
I’ve been slowly posting more pictures. We hadn’t really posted any since before Christmas, so there is quite a backlog. Make sure to check previous pages on Flickr, as you’ll probably find newly posted pictures there as well.
February 27th, 2008
Our first week of therapy is behind us.
Anna’s doing much better, health-wise. The steroids took effect almost instantaneously, and while she still has a runny nose and cough, at least she’s not croupy.
More importantly, by Wednesday she was pretty much sleeping through the night. She’s working so incredibly hard in her therapy that sleep itself has become something of a reward. After working her little tail off for six straight hours between 7:00AM and 1:00PM, she really looks forward to her afternoon nap(s). And for the past three nights she’s been reluctant to read books and has flat out refused to have us sing songs before we put her to bed. “Do you want to read another book?” “No.” “Do you want Mamma to sing songs?” “No. Seep”, she says. “Seep”.
Therapy has been going very well, and we’ve accomplished a great deal in just one week. But it has not been an easy road. The therapists work the girl very hard, and during the first couple of days she put up quite a fight. I think Wednesday was our lowest point. Tara had to leave the therapy session for about an hour because Anna was having a total meltdown and refused to comply with even the simplest request. Tara and I and her therapists all agree that it’s incredibly important for us all to help Anna realize that she’s not going to get out of therapy just by throwing a fit, but knowing that doesn’t really make it any easier on anyone when the poor girl is throwing a tantrum because she’s exhausted and sick and frustrated and all we want to do is stop the damn therapy session and give her hugs.
But the perseverance has started to pay off. By the end of the week there were far fewer tantrums, and today (Saturday) she had an amazingly positive therapy session, with not a single tantrum and some real milestones. She’s now able to bear significant weight on her left arm independently for several minutes, she’s really improved her supination (turning her left hand over with her palm up and open), she’s doing amazingly well with her pincer grasp (thumb and pointer finger) with tasks such as turning pages of a book or picking up small objects, and she was successful, for the first time today, in independently stabbing a piece of food with her fork and bring it to her mouth. Almost as important: She’s now starting to grasp the concept of delayed gratification — that when we say “do X now and you’ll get Y later”, she understands enough to work through the difficult task at hand for the promise of a reward later. This is a Very Big Deal for someone not even two years of age, and extremely important to making forward progress in therapy sessions.
It’s been a very long, very tough week, though. Poor Tara’s now managed to catch a cold (due to lack of sleep and way too much stress), and nobody’s happy when Momma’s sick, let me tell you. I’ve been trying to keep up at work, but it’s honestly been much more difficult than I’d expected to be super-productive and engaged when I’m 1,300 miles and a time zone away and always a little bit exhausted from stress and lack of sleep. And while it’s been great to touch base with some family and friends by phone or video chats, it usually just reminds us how lonesome it can be here away from our home. We miss our family, our friends, and our usual routine. And of course we really miss Max.
After six straight days of therapy we get tomorrow off. We’re going to try and get out of the apartment and roam around a bit, though it’s also possible we’ll just relax at home. We’ll start our second week on Monday, with our therapists arriving extra early (to make up for lost time at the doctor’s on Tuesday) at 6:45AM! (Our therapists, it should be said, “kick ass” — to use the technical term — and we’re extremely happy with all they’ve done and are doing).
February 23rd, 2008
It’s official, Anna has croup! After yet another fun-filled night of little to no sleep and a couple of 15-minute sessions locked in the bathroom with the hot shower running, we decided to take her in to see the doctor. We went to see our therapist’s pediatrician at their “sick-kids” clinic. It seems Birmingham is having a massive flu outbreak, so the clinic was packed. Neal and I made frequent use of the antibacterial/germ-killing gel! It took us literally 2 hours to see the doctor. We were totally unprepared for such a long wait. We were moved into a small exam room where we tried to entertain the 2 year old for more than 1 1/2 hours! She told us multiple times, “Coat…door…go.” As time dragged on, we were all ready for “Coat…door…go.” The doctor tested her for strep and flu (both negative, thankfully), and finally gave us some steroids for the croup. We notice a difference in her cough already! Here’s hoping we have a good night.
In light of our lack of a good night’s sleep and Anna’s illness, we opted to cancel our therapy for this afternoon. We got in 2 1/2 hours before we left for the doctor – that leaves 3 1/2 hours that we will need to make up. They are very serious about making sure that Anna receives her 6 hours of therapy per day! I suppose if they have a method that works, they should stick with it. I have to admit that it all seemed a bit rigid today. My parental instincts wanted to say…”hey, back off…can’t you see she doesn’t feel well?” Every few minutes were filled with crying, which led to a runny nose, which led to a cough, with led to the barking, etc. etc. Surprisingly, she did quite well this morning despite her lack of sleep and nasty cough. She’s such a tough little thing.
This evening we talked online with “Henny” (Anna’s cousin, Henry) and aunt Jo. It was great to see them both, and made us realize how much we do (will) miss them. Anna became really upset when it was time for us to say good-bye. She just kept saying “Henny, Henny, Henny…no, Henny.” It was just very difficult to end the call. Both the kids seemed confused that they just couldn’t get together to play. Distance is a hard concept for the kidlets.
February 19th, 2008
Not us! Last night was a very long night for Anna and me. Anna seems to have picked up some bug (or already had a bug) that took advantage of the fact that she had no sleep yesterday. She had a fever last night of 102 degrees. That, coupled with the fact that she’s in strange place in a pack-n-play, didn’t make for a particularly good night last night. I ended up sleeping with her in her room. There’s a queen-sized bed in her room, but I certainly wouldn’t know, as I was clinging to the very edge while Anna took the rest. She just wanted to be close, and kept insisting on sleeping on me. I generally like to sleep in a cool room, with a cool pillow, etc. The heat generated from Anna’s hot little body was not really conducive to good sleep for Tara.
So far today, Anna’s been a bit of a mess. She’s obviously exhausted, but not really wanting to take a nap. We finally insisted on the nap, and she’s going on 3 hours! She even managed to sleep through a pretty loud thunderstorm (I felt like I was in Kansas again! You just don’t get storms like that in Colorado.). Hopefully she can sleep off the worst of this bug. If not, we’ve been googling the nearest urgent care.
When she finally wakes up, we’re off to Target to spend some big bucks. You really take for granted the fact that you have condiments, spices, and what-not in your pantry. We don’t even have any dishwashing detergent to wash up the pots we’ve used.
February 17th, 2008
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